Wednesday, February 4, 2009
Wednesday Night
Hunter's heart rate is down, which is good... and his temp is down to 101, so that is better! He still needs to get his breathing to 20 times per minute on his own before they can even think about taking the breathing tube out. The Sedation medicine and other medications are still slowly coming out of his system. He seems to be getting stronger, but still has a long way to go. He is very agitated. He worked his leg a little off the bed, so they had to put a strap like thing from the top of the bed to the foot to keep him from getting his legs off the bed. He also chewed through the tape that keeps the breathing tube in his mouth and started pushing it out with his tongue. They are trying not to stimulate him too much, because the Dr. said that wasn't good either. But, he said the moving and agitation and things will get worse before it get's better. Physical Therapy came in again today and his legs seem to be getting a bit stronger. Then, at one point he seemed to be snapping his fingers at Grandma Laub trying to get her attention. So, they thought that was great that he could snap his fingers. He has a lot of work ahead of him, but his progress has been so great!
Slumber Parties and Games
My new favorite past time is slumber parties with Hunter.(This is Jessica, the older little sister)I haven't had a computer to do any updates lattely so now that I have the chance I decided to take it. Since its been a few days I dont know what dates this actually all happened but ill try the best I can. When Hunter was first waking up he would lift his arms up a little. I was on that night for a slumber party in Hunters room. While I was the one who wanted to stay up all night, Hunter was still sleeping with his eyes closed. The reason I couldnt sleep is because he was making those small movements and I was just to excited to sleep... afraid that I would miss something. Towards the early morning he was trying to open his eyes a little. About 6:00 am they were really starting to open. He got to the point where he had them opened looking at me for two seconds and then he would close them up to the beginning point of just barely having them opened. By this time I was ready to crash. At 6:30am I couldn't keep my eyes opened for the life of me. It was very exciting though. We Continue to have slumber parties and they continue to get better each time.
Now for the games part. As it was mentioned I played ball with Hunter for 4 hours yesterday. Boy was that fun! Okay so honestly I really enjoyed the first half hour of it after that it got really old but Hunter seemed to really like it. Before we started playing ball though I made him really upset so Ill start this story from the beginning. I came in to take my shift at 10:00am. I got there and Hunter was pretty busy with his hands. My mom was going to go to the store to find him a ball to play with because he kept wanting to hold her cell phone and his Ipod. We had figured a ball would be better becaues it wouldnt break. While she was gone to the store Jared had called me and Hunter was holding my phone. I took the phone from him and put Jared on speaker so Hunter could hear. I put it back into Hunters hand so he could hold it while Jared talked. Hunter really liked hearing Jared's voice but as time passed he started to get really upset. He kept opening his mouth to talk but because the tubes are still in nothing would come out. I could tell he was getting frustrated so I told Jared I would call him back later because I needed to get Hunter to calm down. Once I hung up I looked at hunter and his chin was trembling and his chest was shaking. It looked like he was wanting to cry. He wanted to hold the phone still but he was still very upset. I tried everything to calm him down but nothing was working. Hunter had the phone in his hand and opened it up as if he were calling someone. He couldnt get it to send to anyone though so I finally decided to try to call Jared back to see if that would calm him down. Jared said hello and then Hunter closed the phone back up after a few seconds. Meanwhile I was trying to get a hold of my mom. She should have been back already and she wasn't answering her phone. Finally she called back and said she would be on her way to see if she could calm him down. I knew she could because he responds to her so much better than anyone else there. Once she got back to the room Hunter was calming down. She asked Hunter if he was mad at Jessica and he shook his head no. For some reason I dont know if I believe him :) He likes me now so I guess thats a good thing. Once he was calmed down my mom was ready to leave but she gave Hunter a racquetball to play with before she left. He loves that ball! Once she left we were playing ball non stop. He would find the ball next to him on his pillow and then put his hand over the side and drop it. I would let it bounce once and then put it back in his hand where this process would repeat itself over and over again. After a little while I was worn out. I told him I needed a break for a minute and so I kept the ball. I was sitting over in the chair relaxing and he kept putting his hand over the edge of his bed waiting for the ball. I would tell him to give me a minute to rest and he would put his hand back in his bed and wait. Well he would wait about 5 seconds before it was up again waiting for his ball to come to his hand. It made me laugh every time. The nurse told us not to respond to his every move but its so hard for me not to. My mom said just tell him you are still in the room when he wants you and then let it be. But once he gets that hand over his bed I cant ignore it. Thats how I got stuck playing with the ball for 4 hours. I was so happy when my shift was over! I'm so happy to see Hunter doing so much better but that kid sure can make me crash as soon as I walk into the hotel.
I am heading back to Cedar to be with Jared for a day and pick him up to go back down there for the weekend. Before I left Las Vegas I stopped at the hospital to say goodbye to Hunter. I went in and played ball with him for only 5 minutes this time but that was enough. I gave him a hug and asked him if it was okay if I went home. He nodded his head yes. Then I asked is it okay if I bring Jared back with me and he nodded yes again. But then he stuck out his hand off the bed and put it on my hip and pushed me away to go get Jared.
Now for the games part. As it was mentioned I played ball with Hunter for 4 hours yesterday. Boy was that fun! Okay so honestly I really enjoyed the first half hour of it after that it got really old but Hunter seemed to really like it. Before we started playing ball though I made him really upset so Ill start this story from the beginning. I came in to take my shift at 10:00am. I got there and Hunter was pretty busy with his hands. My mom was going to go to the store to find him a ball to play with because he kept wanting to hold her cell phone and his Ipod. We had figured a ball would be better becaues it wouldnt break. While she was gone to the store Jared had called me and Hunter was holding my phone. I took the phone from him and put Jared on speaker so Hunter could hear. I put it back into Hunters hand so he could hold it while Jared talked. Hunter really liked hearing Jared's voice but as time passed he started to get really upset. He kept opening his mouth to talk but because the tubes are still in nothing would come out. I could tell he was getting frustrated so I told Jared I would call him back later because I needed to get Hunter to calm down. Once I hung up I looked at hunter and his chin was trembling and his chest was shaking. It looked like he was wanting to cry. He wanted to hold the phone still but he was still very upset. I tried everything to calm him down but nothing was working. Hunter had the phone in his hand and opened it up as if he were calling someone. He couldnt get it to send to anyone though so I finally decided to try to call Jared back to see if that would calm him down. Jared said hello and then Hunter closed the phone back up after a few seconds. Meanwhile I was trying to get a hold of my mom. She should have been back already and she wasn't answering her phone. Finally she called back and said she would be on her way to see if she could calm him down. I knew she could because he responds to her so much better than anyone else there. Once she got back to the room Hunter was calming down. She asked Hunter if he was mad at Jessica and he shook his head no. For some reason I dont know if I believe him :) He likes me now so I guess thats a good thing. Once he was calmed down my mom was ready to leave but she gave Hunter a racquetball to play with before she left. He loves that ball! Once she left we were playing ball non stop. He would find the ball next to him on his pillow and then put his hand over the side and drop it. I would let it bounce once and then put it back in his hand where this process would repeat itself over and over again. After a little while I was worn out. I told him I needed a break for a minute and so I kept the ball. I was sitting over in the chair relaxing and he kept putting his hand over the edge of his bed waiting for the ball. I would tell him to give me a minute to rest and he would put his hand back in his bed and wait. Well he would wait about 5 seconds before it was up again waiting for his ball to come to his hand. It made me laugh every time. The nurse told us not to respond to his every move but its so hard for me not to. My mom said just tell him you are still in the room when he wants you and then let it be. But once he gets that hand over his bed I cant ignore it. Thats how I got stuck playing with the ball for 4 hours. I was so happy when my shift was over! I'm so happy to see Hunter doing so much better but that kid sure can make me crash as soon as I walk into the hotel.
I am heading back to Cedar to be with Jared for a day and pick him up to go back down there for the weekend. Before I left Las Vegas I stopped at the hospital to say goodbye to Hunter. I went in and played ball with him for only 5 minutes this time but that was enough. I gave him a hug and asked him if it was okay if I went home. He nodded his head yes. Then I asked is it okay if I bring Jared back with me and he nodded yes again. But then he stuck out his hand off the bed and put it on my hip and pushed me away to go get Jared.
Feb 4, Morning
Hunter started off with a restless night, His nurse Jessica could see he wasn't going to get some rest, so they gave him some sleeping medicine so he would sleep.
He slept frown 1:00 - 6:00 then lights on.
First thing he wanted was his ball we bought him yesterday so he can play. He played ball with Jessica for 4 hrs. When we say play ball its like playing with a toddler. You give him the Ball, he throws, you chase, then give it back to him. But today playing with his dad, Duane will throw the ball by Hunters hand, he has to find it and throw it back.
the Infectious Disease Dr. came in this morning, Hunter's white blood count is 22,000today, as long as it goes down that's good.
Physical therapist came in just now and worked with Hunter, He had to count with his fingers thumb to first finger, then second etc..... He did well. She gave him a comb and asked if he knew what to do with it and he throw it down. (Little does she know he's never been able to learn that one before, but at least when she handed him a tooth brush he opened his mouth and tried to reach it.
As far as knowing any damage Hunter may have from the fall, this is the only way we will find out, is by working with him and seeing what he can and can't do.
They're working on his legs now, they work with them first to see the strength he has for when it's time to walk. he's able to kick but needs more on bending.
Dr. Davis hasn't come in yet, we are still waiting. but it's not even 9:00 yet.
Duane and I just really want to Thank everyone for everything they have done. I'm not usually one to ever ask for help.
I started doing thank you notes, but can't remember where I've put them. Half the time I'm looking for something like sunglasses, I find them on my head. Cellphone, looked for it, it was in my sweatshirt pocket the whole time. I'm not "losing it" anymore, I've Lost it. But that's beside the point.
We are so amazed of things and notes people have done or wrote in. Things we've never thought you would do for others in a time like this.
Again, Thanks so much.
Kimberly and Duane
He slept frown 1:00 - 6:00 then lights on.
First thing he wanted was his ball we bought him yesterday so he can play. He played ball with Jessica for 4 hrs. When we say play ball its like playing with a toddler. You give him the Ball, he throws, you chase, then give it back to him. But today playing with his dad, Duane will throw the ball by Hunters hand, he has to find it and throw it back.
the Infectious Disease Dr. came in this morning, Hunter's white blood count is 22,000today, as long as it goes down that's good.
Physical therapist came in just now and worked with Hunter, He had to count with his fingers thumb to first finger, then second etc..... He did well. She gave him a comb and asked if he knew what to do with it and he throw it down. (Little does she know he's never been able to learn that one before, but at least when she handed him a tooth brush he opened his mouth and tried to reach it.
As far as knowing any damage Hunter may have from the fall, this is the only way we will find out, is by working with him and seeing what he can and can't do.
They're working on his legs now, they work with them first to see the strength he has for when it's time to walk. he's able to kick but needs more on bending.
Dr. Davis hasn't come in yet, we are still waiting. but it's not even 9:00 yet.
Duane and I just really want to Thank everyone for everything they have done. I'm not usually one to ever ask for help.
I started doing thank you notes, but can't remember where I've put them. Half the time I'm looking for something like sunglasses, I find them on my head. Cellphone, looked for it, it was in my sweatshirt pocket the whole time. I'm not "losing it" anymore, I've Lost it. But that's beside the point.
We are so amazed of things and notes people have done or wrote in. Things we've never thought you would do for others in a time like this.
Again, Thanks so much.
Kimberly and Duane
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