Sunday, April 19, 2009

Hunter's doing Great

Haven't updated in a month... Hunter and everything else keeps us busy. So thing are going great. Life is Good. We've have now seen all the Dr.'s. Still doing blood test all the time for the blood thinners. He'll go to Las Vegas for another ( ??? ) where they'll put all the wires to his head to watch brain movement for seizers. So sometime in the next two weeks he has Dr. Orders to stay up all night long and play video games so he can be slept deprived for the test. (every teenagers dream) but we have to wait for Insurance approval. Insurance everyone nightmare. The only other nightmare worse than them is not having any at all.

But right know there is another family member that needs everyone's prayer at this time. And they have there own blog you can find it at www.shanejensenfam.blogspot.com
We know that prayers are felt, and right now they need ours. Please keep them in mind their roller coaster look like a long rough one.

Monday, March 16, 2009

Monday, March 16, 2009

This last week pretty much like the last, appointment, appointment to more appointments. Hunter's doing really good.

Tues, March 10, ended up being a pretty good day. no therapy, no Dr. appointments, and his teacher called and had meetings so no school. (yet we still stayed busy)
We found out Jessica and Jared are having a GIRL!! So I guess the can't name her JUNTER after all. Hunter's got to be sad about that one.

Wed, March 11, Started the day off with blood work at Mesa View, which they have upped his dose the full to half to half to full. Good thing they write everything down for us so we can keep it on the fridge. Then off to Physical Therapy were Duane decided Hunter needed to go 5 days a week, Hunter compromised and says he'll go 4.
then after therapy, off to school.

Thurs. March 12, While I went to St. George to get Jessica so we could bottle more meat Duane took Hunter to all his appointment, even school!!

Friday, March 13, Hunter gets a visitor Justin (Jessica's brother in Law) He and Hunter hit it off pretty good at the wedding and are good friends. He got to come and visit for the weekend. He went with Hunter the Physical Therapy, Therapy took a lot longer but the two of them seemed to have fun. Not sure about the people who work there but they were. (Just kidding)

Hunter wasn't quite thinking today, he actually brought out his air soft guns so him and Justin could go out back and shot army men. Then Hunter and Justine went for a ride on the Rhino, but Hunter is afraid to go in the dirt with it, in fear he will tip over. And of course Alex saw it as an opportunity for war, Air soft gun War. Alex and Sam against Justin and Hunter. Let's say Justin got Alex good and Alex really made Hunter mad. So then Hunter stayed home while Alex, Sam, and Justin went for a ride.

Friday, Evening Jessica and I took a break from bottling meat the take the boys bowling. Calab, Sam and Alex left in one car and as the rest of us went to get in another car an air soft gun came out the window and was ready to shoot, Hunter saw this and decided to run. Well we found out Hunter can't run yet. He feel flat on his face and bruised up his already hurt knee really good. I'm sure the blood thinners didn't help with the bruising. It was so funny watching the boys bowl. It was cosmic bowling and they let us have bumper pads because of Hunter's strength and Justin has never been bowling before, so we only thought it was far to ask. It was fun to watch. Hunter would go to bowl he would bring his arm back and about the time he would be by his side his whole arm would just fall. He has so much work to do to become strong. But in all we had fun, we followed that up by Hunter getting to shoot of his pinewood derby car rocket engine he created. Our neighbors must love us.

Saturday, March 14, Duane and I have been married 22 years!!! Hunter and Justin stayed home most of the day watched movies and played video games. While Duane, Jessica and I went to the St. George Temple where Brittney was going for her first time. She gets married on the 21st. When we got home we got things cleaned up from bottling meat, and played board games with the boys. We were all tired thought we all went to bed early (10) but come to find out today Hunter says they stayed up.

Sunday, March 15, Justin's dad came and got him early (8) but he went into to wake Hunter up to tell him goodbye, Hunter actually got up and stayed up. Got showered and ready for church and gone to church before I had to even remind him what time it was. He beat Alex and I to church. He passed the sacrament today. He said he got a little tired but it was good seeing him being able to do what he believes in.

Monday, March 16, Had foot Dr. appointment this morning. We are cleared unless things don't change in the next 4 week. While we were at this appointment with the help of nurse in the Office she was finally able to get some answers for me on the IVC Filter that I have been trying to get answered for over a week now. We are scheduled next Monday to go down to Mountain View Hospital to have it removed. It's suppose to be an out patient procedure. We also found out the reason we have not heard back on the appointment for the neurologist is because the one Dr. Anson wants us to go to is not on the Insurance list. So now we have to wait to here from them to see what we do next. I keep telling myself one day everything will end.

After this we ran over to Grandma and Grandpa Laub's for a minute and saw Grandpa's awesome chicken coop. And to return Great Grandma Leavitt's pressure cookers we borrowed. Then we had Therapy and school and then Homework.

Wow!! and now we start another week...

Monday, March 9, 2009

Another week

I heard some people think Hunter is still in the Hospital. He's Home and he's doing so well. His mind seems to be the same Hunter. He gets angry easier and we joke with him that we are going to send him to anger management school. He's just so frustrated that he has no con troll over his life. Everyone is telling him where to go what to do etc.... I totally understand what he feel. I am so thankful for the miracle of Health he has, but I too will be happy when life is back to normal.
But he's doing really well and seems to just need to build strength and become stronger and more balanced so he can return back to normal school.

Feb 28, March 1, : Hunter gets to stay with Jessica and Jared and Jessica got him to eat almost 1/2 of a slice of french toast. Yeah! On Sunday we meet up for the child exchange (ha ha) at Uncle John and Aunt Dorea's House. And what a wonderful feast they had waiting for us. Thank you so much.

March 2, Monday, took Hunter into Mesa View for blood work due to blood thinners he is on, and of course new computer system so it took much longer than planed 1 1/2 hrs latter we found out his numbers were too high and they have him off medication until Thursday and he'll start on a half of dose.

First day of school for Hunter. He gets 5 hrs a week with a teacher and we do this at 1:50 Mon - Thurs. it doesn't sound like much but they do accomplish allot and he is tired with that short amount of time.

March 3, Tuesday : Took the day to visit Great Grandma Leavitt, He enjoys going over and visiting with her. I think Grandma Leavitt is still stronger than Hunter. and then of course we had School. After School we had another Dr. appointment to find out about the MRI on his shoulder. Found out everything is okay and he can start therapy. So then we went to Therapy to set up time.

March 4, Wednesday - Went to Las Vegas for Dr. Appointments, this time with the ones that monitored his brain pressure in the TICU. Hunter needed to us the rest room after they took us back in the office so while he was out of the room the Dr. comes in and Hunter's gone, I told her where he was and she said, "He's walking?" she was so surprise that he was doing so well. The other Dr. in the Office that also helped with Hunter was also excited how well he has recovered with no damage from their view, and said we never had to come see them again. However they are setting us up with the Neurologist for our next appointment to see about the seizure medication to see if we can start taking him off it.

March 5, Thursday - Hunter started Physical Therapy today, he did really good, he listens and try's everything they tell him too. unlike with his dad. He doesn't even argue with them. and the we were off the Mesa View for another blood test, and of course they couldn't find us in the computer again and we had to do the registration all over again. so another day of long registration to wait in a 2nd waiting room for the test. Test was good and he'll start back up on 1/2 medication tonight.

After Blood test we were off to the eye Dr. we just can't get enough of this wonder fun. Hunter's eyes have changed 4 steps. not sure if that is normal or if it's because of the accident. I'm so tired I forget to ask some questions at times.

March 6, Friday - Kinda a quieter day. No Dr. Appointment, Hunter and I went to do Great Grandma Leavitt's hair and then took her for a long ride to Mesquite to see what has changed in the landscaping of the hills. Grandma just wanted to get out of the house for a while. We enjoyed the ride and visit with her.
And then of course he had school because we missed because of Dr. Appointments the days before.
Jessica and Jared come to visit.

March 7, Saturday, No school.... No homework..... No Dr. appointments..... But of course everyone had to go outside and pull our really big big weeds and tiny ones too, that grew so well while we were gone. It was so nice to see it get done. and I'm sure Jessica a Jared were glad they came to visit and help out. Hunter help was taking our garbage to a bigger garbage and was our water boy (somethings never change)

March 9, Monday, The weekend was kind of stressful. I think everyone was so tired that all we did was annoy each other, and too much noise going on that any little chance we have had today we have been taking naps. It's almost that everyone has hit a block wall.

We started the day off with Dr. appointment for his foot, he didn't get cleared thought thing look pretty good they want to see him one more time next Monday.

Next was Physical Therapy, a trip to Grandma Leavitt's and Grandma and Grandpa Laub's. and back to Mesquite for School. By 4:00 we had dinner and back to a nap before bed time.

Friday, February 27, 2009

Friday,Feb. 27,

One more day at the Dr. Office, this time we went to St. George to the get Hunter's foot checked out. Dr. Stewart ended up cutting off Hunter's leather like skin from the bottom of his foot from the bed sore he got from TICU. It actually looks pretty good. New skin was already coming in underneath it and there was no infection. So another appointment finished with great news. He'll see him again a week for Monday, and it should be his last appointment with him.

Haven't heard on the MRI on his shoulder, so maybe Monday we'll know more.

After his appointment we meet up with Jessica and she finally got her Birthday Gift from Jared. He got her a really nice Lazy Boy Rocker Recliner, I think I actually enjoyed siting in the chairs at the store for 2 hours while she decided which one. Just sitting and rocking and caring about anything else. Duane and Hunter hauled it to Cedar City for her, while she and I went looking for maternity clothes. (found none)

Hunter gets to stay up there tonight with Her because he finally ate 5 bites of something. (yogurt) that's the most and fastest he ate without us basically holding him down, threatening him to eat. It is so much work for him to take a bite of anything, it's so wired, he used to eat all the time, now he won't eat at all.

Jessica will bring him back home tomorrow after Jared goes to work.

Thursday, February 26, 2009

Hunter's First Week Home

I was told I needed to keep the blog up, and not sure where to start.

Friday, Feb. 20, I took Alex with me to help Drive to pick Hunter up.While we were gathering all of the things we had in Hunter's room the nurse came in to give me discharge instruction. And of course Alex thought Hunter's wheel chair was really cool and had to try it out. When I say try it out it's how long and high can you pop a wheelie in the wheel chair. Not sure how long but the height was up and over the back side with him landing on his back side lifting his head so it wouldn't hit the floor. I couldn't believe what was going on, for a split second I thought we were going to start all over again. The Nurse asked me why I didn't yell at him. I told her I was so tired I had no strength to do it. My only other thought was, He wouldn't listen, and I brought him to help me, what was I thinking?. We got out all nice and safe.

I talked Hunter into coming home instead of staying at the Ronald McDonald House for the night, our beds sounded so much better. So Alex and Hunter got to hang out while Jessica and I clean our room and did laundry.

Jessica and Alex left before Hunter and I, they were to get a head start so they could help their dad at home before we got there. We took a little longer because in Las Vegas I told Hunter we told Grandma Leavitt we were coming home and she said good, now I can get some sleep tonight. When he heard this we had to stop by Grandma's before coming home.

Duane and friends put up a sign and balloons to welcome Hunter home, Hunter really liked it. Thank you all.

And then the fun begins with perceptions to be filled at the pharmacy. Thank heavens for Insurance.

Saturday, Feb. 21,- We had Hunter get on the treadmill and he was able to do 1 1/2 laps with 10 min rest in between each half. We wiped him out, he was tired all day, I actually had to dress him to go to Las Vegas for the baptisms. Dressing a 15 year old with a bad shoulder isn't easy. On our way to Las Vegas, Hunter just kept saying I Hate Las Vegas, I Hate Las Vegas, I said what do you mean Las Vegas saved your life. He says No, Mom it was the prayers and the Priesthood. We made it the baptism and it was great to see all the family there.

Sunday, Feb. 22, - Hunter only made it through Sacrament Meeting, and then we sent him and Jessica home to rest. Alex wanted to go, but we told him he didn't spend enough time at the side of his hospital bed to be first choice to take Hunter home. and then from 5 - 7 we had family and friend over to visit with Hunter.

Monday, Feb. 23, - Spent most of the day on the phone with Insurance and setting up Dr. appointments. At 12:30 we had an I.E.P. at the High School to figure out what going to happen with Hunter and school. He's going to be on Home bound till sometime in April.

Tuesday, Feb, 24 - Had Dr. Appointment at 9:45 - he was suppose to start his medication for his blood clots. Of course this Dr. had never done it before so we had to schedule another appointment for Wed. to see a different Dr. but did get the prescription for the MRI and Physical Therapy, and medication for Zytac? because Hunter isn't eating anything. Then at 11:00 we went to Mesa View to make an appointment for the MRI, so of course more waiting.

Wednesday, Feb 25, - New appointment at the Dr. Hunter is now taking blood thinners for his blood clots. Let's hope he doesn't get cut. And then back to Mesa View to do the MRI. (we'll find out Fri.)

Thursday, Feb 26, - Today is our lazy day. All we did was Grandma Leavitt's Hair and did some candling on Hunter ears because he was complaining about them popping when we read our book. That boy produces ear wax like sherk does.

Tomorrow we go to St. George for the foot Dr. (I think we are getting a glimpse of what retired people do)

Something funny about Hunter: He notices everything, his new nickname is MONK. Just one example out of many is last night when I went to tuck him into bed it drove him crazy that the 4 screw in the light switch weren't the same direction. I told him he can get a screw driver and fix it anytime he wants. So he's not as bad as MONK because he didn't fix it.

He mess' Jessica, he's always asking when she's coming back. I tell him that she needs to be home with her husband. He gets on my cell phone and calls her and tells her we are all stressed out, and Mom and Dad aren't getting along, and she needs to come NOW. He makes me laugh. He also say everything he thinks. You have to be very careful on what Hunter tells you to know how much of it's true.

Another funny thing is he's always telling Alex it's past his bed time and he needs to go to bed, and that he has to turn off the noise to the game system and that he been on to long. He just might make a better mom than I do.

Thursday, February 19, 2009

Hunter Gets Out Early

It's hard to believe it was just 4 weeks to the day, and Hunter will be out tomorrow.

Hunter will be out of Rehab on Friday, He asked the Dr. if he could leave Friday and they said he could. He wants to stay a night at the Ronald McDonald's house. So when we check out of Rehab in the morning we are heading there. We will stay there for the day and on Saturday, Hunter is going to go to his Cousins Baptisms.(Marsha's Kids)That live in Las Vegas.

He was worried we were going to make him go to school on Monday, he just knows Uncle Brent is talking to all his teachers and saving him his homework. He's so overwhelmed when school is mentioned. But Hunter won't be back at school for a while, He still had a lot of work to do physically before he will have all his strength before that happens. We meet with the school on Monday, so we'll know more then.

Hunter still asks about his hair, it really bothers him that he is still so bald. He's always asking, "Why am I so bald". the scare on the back of his head looks like an eye. I tell him he's got an eye on the back of his head now so everyone better watch out.

He still asks the same question over and over. He forgets he already ask or he'll remember he asked but forgot the answer. Today he was, Mom I know I already asked, but do I get to go home tomorrow?

They ordered an MRI for Hunter's right shoulder, but haven't heard from the insurance yet, so we hope we can just do that in Mesquite, of course we have to find us a Dr. we haven't been sick so we don't have one sense our family Dr. retired what maybe 8, 10 years ago. And he should also start medicine for his blood clots starting next week. So were not done with Dr. yet. but a least we get to sleep in our own beds!!!!!

Tuesday, February 17, 2009

Visit with Mahana

Kim brought Mahana (family Chihauhau) to the hospital for a visit - Hunter was able to go outside and play in the grass with her for 30 minutes. Mahana could not have been more excited to see Hunter.

Later Kim spent some time with Hunter reviewing each of the posts that had been written on the blog. Hunter was constantly concerned when listening - and wanted to call everyone to make sure they knew he was ok!

Hunter will arrive home on Saturday. Duane has let everyone know that anyone that would like to visit can come by the house on Sunday between 5 and 7 pm.

He's COMING HOME......

It looks like Hunter will get to come home on Saturday!!! Yay! As long as he continues to do what the Doctors ask of him then it looks like he will get to come home on Saturday!! Isn't that soooo great! He is doing so good and is walking around everywhere. He was lost for a while, because he just got up and started walking and the Doctors brought him back and said that he had escaped =). Hunter really wanted to show them that he could walk! They have ordered an X-ray on his right shoulder because he is not able to do a lot of moving with his right arm. He will still need some out patient work with physical therapy and speech therapy. The family is very excited to get home and bring Hunter home and also to be able to sleep in their own beds!